Research Participation Views

Have you ever taken part in a research study?

Choose one:

• Yes
• No

Overall, how did taking part feel to you?

Condition: Shown to people who have taken part before

Choose one:

• Mostly positive
• Mixed
• Mostly negative

What is the main reason you would take part in a research study?

Choose one:

• Curiosity
• Payment or other incentives
• Contributing to knowledge
• Other

What other reason would lead you to take part?

Condition: Shown when Other is selected

Open answer

Thinking about consent documents you have seen or would expect to see, how far do you agree with each statement?

• They are written in language I can follow
• They make clear why the study is done and what it may achieve
• They explain the possible risks well enough

For each row: choose one:

• Strongly disagree
• Disagree
• Neither agree nor disagree
• Agree
• Strongly agree

What made consent documents hard to follow?

Condition: Shown when the documents were rated hard to follow

Open answer

Which of these, if any, worry you about taking part in research? Select all that apply.

Choose any that apply:

• Misuse of my personal data
• Being identifiable from my answers
• My data being used for purposes I was not told about
• Other
• None of these

Please tell us more about the worries you selected.

Condition: Shown when at least one worry is selected

Open answer

How much does a promise of confidentiality affect whether you decide to take part?

Choose one:

• Not at all
• A little
• Somewhat
• A great deal

Is there anything else you would like to say about confidentiality in research?

Open answer